Communications Manager
I pledge to communicate about needs, issues and perspectives of patients effectively to an audience that can work with them in improving their experience.
Terminado
Patient Engagement in Research Area Coordinator-Sant Joan de Déu Children's Hospital
Listen the needs of paediatric patients and their families, in order that when they participate in a research project and/or clinical trial the design and the development we will consider them. Patient centricity means do research not for the patients is do research with the patients.
Terminado
Patient Engagement in Research Area Coordinator-Sant Joan de Déu Children's Hospital
A unique and very valuable form to include the needs of the patients is to allowing them to participate in the the design process. The journey of patients involved in research is not a travel that they can do alone! All the professionals involved have to do their work considering the quality of life of patients and families.
Terminado
I will share with other stakeholders in the health research and care system the concrete ways engaging patients can improve outcomes for everyone.
Trabajo en progreso
Associate Director
I pledge to actively listen to patients because no one better understands their disease or condition than they do.
Terminado
Associate Director
I pledge to co-create tools and resources with patients so their needs, perspectives, and experiences are accurate. I pledge to work with patients as partners in the creation process to respect and include their expertise.
Terminado
I will ensure that I use plain language in all my communications, and I will be more vocal in demanding that others use plain language when communicating with the public, colleagues and organisations.
Terminado
I commit to continue communicating about patient/public and researcher engagement (PPaRE) to diverse audiences.
Trabajo en progreso
Patient research advocate for Parkinsons UK
Play an active role in the Parkinsons UK Research Support Network, East of England Research Interest Group and PPI activities
Trabajo en progreso