Director, Public Policy (USC Schaeffer) & Managing Advisor (Patient Voice Advisors)
Discover and implement new ways to listen to patients and incorporate their perspective in the product development process
Trabajo en progreso
Working with my teams to to develop patient engagement plans that include the patient voice and perspective in our day to day work.
Trabajo en progreso
Patient and Patient Advocate
I commit myself to act objectively, listening to all the parties involved, but always defending the interests of the patients, so that they can participate in the whole HTA process.
Terminado
Patient and Patient Advocate
As a patient and patient advocate, I commit myself to participate with other advocates in the development of networks of interest, in order to efficiently and proactively share knowledge and efforts.
Terminado
In 2019, I’ll be a catalyst between patients and medical representatives, helping them listen, connect and better understand each other’s challenges. My final objective would be to see both parties co-creating in order to grow the patient engagement in real life.
Trabajo en progresoAs a copywriter, I’ll commit to translate in simple & easy to understand words, the initiatives medical representatives will take in 2019 to empower the patient engagement in medicines development.
Trabajo en progreso
Patient Engagement Consultant
I will share our achievements and ongoing work with the Research Support Network and the wider Parkinson's community.
Trabajo en progreso
Patient Engagement Consultant
I will work with our Involvement Steering Group to update our PPI Guidance for Researchers.
Terminado
Patient Engagement Consultant
We will ask researchers and patient and public involvement contributors for their views on involvement in basic research in order to better support involvement and engagement early on in the research cycle.
Terminado