Co-create policy solutions with patients, have them at the table and write together policy recommendations
Trabajo en progresoDevelop a process to include the patient voice in protocol review
Trabajo en progresoFor new studies, look at the feasibility of study procedures from a patient perspective: how would this procedure impact a sick person?
Trabajo en progresoAs part of the development project I'm doing I will develop solutions that are based on feedback from patients
Trabajo en progresoCreating new way of working to better satisfy patients needs in clinical trials.
Trabajo en progresoI will ask patient input to deeply understand their experience of participating in my/our study/ies, in particular regarding (select one or more) screening, informed consent, visit logistics, medication, study and/or visit information, CRF, questionnaire(s), diary, site team, blood and other lab tests…
Trabajo en progresoI will work with (prospective or past) study participants to create patient support materials/information that they feel is needed and helpful
Trabajo en progresoI will ensure a swift and understandable answer to any patient questions in the study, and also share these with the study team so that better/standard answers can be developed (with patients)
Trabajo en progresoPatients and their communities will have a say in the development and implementation of the next clinical trial.
Trabajo en progreso