Being there for the journey of an MPN Patient
Trabajo en progreso
I am committed to co-creating materials and information about clinical trials for patients and the public with patients and the public.
Trabajo en progresoI am committed to communicating with patients respectfully - taking in to account their points of view and valuing their thoughts and opinions.
Trabajo en progreso
Listening is healing
Trabajo en progreso
Senior Researcher, Intl Advisor, People-Centered, Value-Based Healthcare
I involve individual patients in all my research studies before I write the protocol and throughout the research process. I listen and reflect so patients genuinely influence the aim, scope and set-up with the end goal of bettering care and outcomes in mind at all times. I take the time whenever the opportunity arises to have individual conversations with patients, to be in the present with them and to actively reflect on what new information I gain and how I can use that to improve my impact as an ambassador, chief patient officer, and researcher in the field of patient-centred innovation and people-centred healthcare. I do scientific patient surveys to enable the wider healthcare community to listen to the needs, priorities, wishes and ideas of not just a few patients but of large and diverse patient populations.
Trabajo en progreso
Senior Researcher, Intl Advisor, People-Centered, Value-Based Healthcare
I set up and host interactive patient workshops which bring diverse patient groups, including vulnerable populations together. The workshops educate and empower participants as they receive information and are invited to do homework to optimally share their priorities, insights and ideas with others at the workshops. I focus on enabling patients to empower each other, share ideas with one another and work creatively in multi-stakeholder environments to develop clarity on priorities and wishes to help guide national efforts. I involve patients as critical partners in the design of patient-relevant outcomes in the context of people-centred value based care.
Trabajo en progreso
Seek Patient Feedback and Suggestions in creating External Engagement Strategies to impact patient health policies
Trabajo en progresoWork with patients to impact health policy
Trabajo en progreso
I talk to a patient at least once a week in order to stay close to the needs voiced for better care.
Trabajo en progreso