First Edition BOGP (0) Second Edition BOGP (0) Third Edition BOGP (10)
Australia (1) Canadá (1) Alemania (2) España (1) Reino Unido (3) Noruega (1) Estados Unidos (2)
Access Advocacy (policy advocacy, lobbying) Care Delivery/ Care pathway Education (awareness, health promotion) Gap analysis Organization / System Development Policy Research Other
Musculoskeletal/Multiple Sclerosis (MS) (1) Across all conditions/Other (1) Neurology/Parkinson's Disease (1)
Academic Medical Center/Hospital/Practice (3) Biotech Company (0) Foundation (0) Government (0) Health technology Assessment (HTA) body (0) NGO (0) Insurance Company (0) Pharmaceutical, Biotech, Medical Device Company (0) Medical Device Company (0) Private Public Partnership (0) Patient Advocacy Organization (4) Regulatory Body (0) Pharmaceutical Company (9) Research or Technical Organisation (0) Research Funder (0) Research Institution (0) Start Up (3) Think Tank (0) Other (4)
Patients Patient organisation Healthcare professionals Policymakers Regulators Payers (usually governmental or public bodies, reimbursement) Health Technology Assessment (HTA) bodies Pharmaceutical companies or industry (incl. Medical device and biotech companies) Researchers (investigators and academic researchers) Research funders Other (please specify)
Shared purpose Respect and accessibility Representativeness of stakeholders Roles and responsibilities Capacity and capabilities for engagement Transparency in communication and documentation Continuity and sustainability
Research and discovery Preclinical Clinical study phase I Clinical study phase II Clinical study phase III Regulatory Review & Approval Health Technology Assessment (HTA) activities Post marketing

Patient Partnership Program

AstraZeneca
LH
HC
+ 1

Global

En marcha

Consulting a patient and carer group on the design and delivery of a proof of concept drug repurposing trial in Parkinson’s Disease

NIHR Sheffield Biomedical Research Centre (BRC)

Reino Unido

En marcha

  Patients and community feedback on PLSs (Plain Language Summaries)

GlaxoSmithKline, ViiV Healthcare

Global

  Leukaemia Patient Preference Study

Evidera, Takeda Pharmaceuticals

Estados Unidos

En marcha

Reducing and mitigating the burden of clinical trials on patients and care partners

Takeda Pharmaceuticals
JP

Global

En marcha

Roadmap for a future-proof healthcare system

Pfizer

Alemania

Terminado hace más de tres años.

Consumer Involvement in Research Program

Cancer Council NSW
KN

Australia

En marcha

Global Oncology Patient Insight Panel

Novartis

Global

En marcha

Patient information leaflet on clinical trials "Clinical trials – of interest for you?" as paper leaflet and e-leaflet

Novartis
AG

Noruega

En marcha

KPI framework to measure progress on the Novartis Commitment to Patients and Caregivers

Novartis

Global

En marcha

Consulting a patient and carer group on the delivery of Exoskeleton assisted walking to aid cardiovascular fitness in patients with gait problems due to Multiple Sclerosis

NIHR Sheffield Biomedical Research Centre (BRC)

Reino Unido

Terminado hace más de tres años.

Pregnancy and Parenting with Arthritis

Canadian Arthritis Patient Alliance

Canadá