Patient Engagement Synapse

Select edition

First Edition BOGP (0) Second Edition BOGP (0) Third Edition BOGP (10)

Country

Australia (1) Canada (1) Germany (2) Spain (1) United Kingdom (3) Norway (1) United States (2)

Primary focus

Access Advocacy (policy advocacy, lobbying) Care Delivery/ Care pathway Education (awareness, health promotion) Gap analysis Organization / System Development Policy Research Other

Medical condition

Musculoskeletal/Multiple Sclerosis (MS) (1) Across all conditions/Other (1) Neurology/Parkinson's Disease (1)

Organization type

Academic Medical Center/Hospital/Practice (3) Biotech Company (0) Foundation (0) Government (0) Health technology Assessment (HTA) body (0) NGO (0) Insurance Company (0) Pharmaceutical, Biotech, Medical Device Company (0) Medical Device Company (0) Private Public Partnership (0) Patient Advocacy Organization (4) Regulatory Body (0) Pharmaceutical Company (9) Research or Technical Organisation (0) Research Funder (0) Research Institution (0) Start Up (3) Think Tank (0) Other (4)

Stakeholder

Patients Patient organisation Healthcare professionals Policymakers Regulators Payers (usually governmental or public bodies, reimbursement) Health Technology Assessment (HTA) bodies Pharmaceutical companies or industry (incl. Medical device and biotech companies) Researchers (investigators and academic researchers) Research funders Other (please specify)

Quality

Shared purpose Respect and accessibility Representativeness of stakeholders Roles and responsibilities Capacity and capabilities for engagement Transparency in communication and documentation Continuity and sustainability

Research and discovery Preclinical Clinical study phase I Clinical study phase II Clinical study phase III Regulatory Review & Approval Health Technology Assessment (HTA) activities Post marketing

Access