Patient research advocate for Parkinsons UK
Play an active role in the Parkinsons UK Research Support Network, East of England Research Interest Group and PPI activities
Work in progress
Patient research advocate for Parkinsons UK
Continue to be an ambassador for research and patient engagement, through Branch meetings, presentations, tweets and website posts.
Work in progress
Head, Product Development Patient Insights
I commit to influencing development teams to see the value of including patients and caregivers in their development planning, and to holding them acocuntable for actively incorporating patient views and preferences.
Completed
I commit to continuously engage in discussions with all stakeholders to help shift the mindset towards true patient-centricity.
Work in progress
Patient and Patient Advocate
As a patient and patient advocate, member of international patient groups, and with access to congresses and events where we can access information of interest on treatments, studies, diseases, I commit myself to share all useful information with the network of patients with whom I can be related, using plain and clear language, or facilitating direct access to the original papers.
Completed
I’ll interview 3 patients in the next 6 months, to better understand what medical representatives could do immediately to improve their engagement in medicine development lifecycle.
Work in progressI’ll promote 3 successful stories of patient engagement done right in order to inspire others to participate.
Work in progress
Patient Engagement Consultant
I will consult with our contributors to capture their experiences and learn what they want our Patient and Public Involvement programme to look like moving forward.
Work in progress
Patient Engagement Consultant
I will work with our contributors to develop training and resources to support them in their role.
Work in progress
